Beyond the Pale Folklore, Family, and the Mystery of Our Hidden Genes

[Prohibitive]

Type : epub |
Size : 4.37 MB
English |
9781443423588 |

Descirption: The story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. Ne of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, Emily asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.
A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's...

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